Well, I would love to be able to report that Anna is home with us, but she's not. I think she is getting closer, though.
Her lungs are doing much better. The pulmonologists are very pleased with how she is healing. She is still receiving therapies, and occasionally oxygen, but we are tickled pink with her progress.
Tomorrow she will have a g-j tube inserted. This is a type of feeding tube. It would be problematic for her to come home with her n-j tube (which is inserted through her nose) because if it comes loose, we have to travel all the way back to the hospital to have it reinserted and the hospital is almost two hours away. The g-j tube should be more stable. I would think more comfortable as well.
No one has mentioned when she might come home after the surgery, but if things go well, I hope sometime next week.
During all this time, she has been receiving outstanding physical, occupational, speech and music therapy at CHOA. Her progress is mindboggling! She is holding up her head which I never thought would happen without the cranial reduction surgery. She is gaining weight. Her brother who hasn't seen her in weeks, commented yesterday that her arms look "fat." Yippee!!! Fat is definitely good for this girl.
Hopefully my next post will be to let you know she is home!